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1. 

   Comment by Laura on 21 January 2010:

   We’ll also be talking about what to do if you’re an SLP or early interventionist working for a program that advocates the “no toy bag” approach. You can’t even imagine all Kate and I have to say about this one!!
2. 

   Comment by Cetta on 21 January 2010:

   I missed Cetta’s interview on the radio. How can I hear it???
   Rae Venus
3. 

   Comment by Laura on 21 January 2010:

   Rae - To hear Cetta’s call in today to the podcast, click on the arrow on the blue blogtalkradio icon in the right-side column. It was a great call!! Enjoy! Laura
4. 

   Comment by Cetta on 23 January 2010:

   Laura
   Quick update. I had the meeting and it went v.good. EI approved another parent/child group which is 1 hr so he’s up to 2 days of that; 2 -45 min/speech;2-45 min/special ed. After the evaluation they will definitely consider the special ed preschool. I went w/Kate’s advice and got a good psychologist through EI who will come to the home; his mommy &me to observe and also at the EI center. I told her all my concerns & can you believe my son is starting the Eval process this Monday. My pediatrician & 2 friends recommended this psychologist who works through the preschool i had visited and thought was good for Ryan.

   I am excited,and nervous but Kate and Laura you have given me trememdous support and great,intelligent advice that made me feel more sure about my meeting. Thanks again.

   I will let you know the results when they are in.
5. 

   Comment by Laura on 24 January 2010:

   That’s great news Cetta!! Keep us updated!! Laura
6. 

   Comment by Cetta on 11 February 2010:

   Hi Laura,
   Hope you are feeling better. I got the preschool to give my son an eval & the results are somewhat in, i am still waiting the OT report. The psychologist who is a masters level felt the CARS was necessary and she scored him a 29; saying he was a borderline kid. The team (psycho/speech/social worker) all felt he exhibited strengths but had some red flags they wanted to watch. The only 2 areas she scored him high was speech and visual response w/a 3. They really felt they wanted him in the preschool to watch and see how he does since he is still relatively young. She told me not to worry about the PDdnos diag now because he should get the necessary services with her report. She told me he could be a different kid in 6 mths and since he has shown improvement she has great expectations for him. My special ed is still pretty adamant about putting him in a normal preschool w/SEIT-i am going w/the psychologist.
   The good/bad news is i had my 2nd interview for a full time job i so desperately need and i am scared to leave him w/o knowing how he will adjust. The preschool runs 9-11:30 and they offer aftercare till 4pm. I just think this is alot but they say they have kids who do it. The job was orignially PT but they really feel now it has to be FT. Oh well, i told them no way right now but eventually i could be FT. I may have lost a job i needed to support the family but i am having a hard time making future plans with my son’s future so up in the air. With a borderline kid in a special ed preschool will 4.5 hours in daycare w/lunch and play potentially be too much for him? Its gotta be better stimulation than at home by himself w/his siblings at school. What to do?
7. 

   Comment by Laura on 12 February 2010:

   Cetta - You won’t know if he can handle the program until you start, so I’d give it a try. If it’s a disaster, you can always modify the day then, but he may surprise you and respond well.

   I’m so glad you got him tested, so that you have real answers that you feel good about. You knew in your heart that he was “borderline,” didn’t you. Congratulations for following your gut feelings and pursuing services for him, even if it was a hard road for you.

   Good luck with the new job! I hope whatever initial transition difficulty there is for you and all of the kids will work itself into a smooth schedule you can all live with! Thanks for keeping us updated, and I’ll be sure Kate reads this from you! Laura
8. 

   Comment by Cetta on 1 March 2010:

   Hi laura,
   Quick update. A new diagnosis–APRAXIC??? i am really confused. Because as you know my therapists were telling me no to PDDNOS but my gut was something was wrong i went to the preschool for the school district eval by the psychologist. They felt possibly PDDNOS with a CARS score of 29. To settle my spirits i went to a private ped neurologist who saw him for 1 1/2 hrs and said he was was to socially related to be PDDNOS. She listened to him try and talk while he played alongside my 4 &7 yr old who were there. He did some picture pointing, puzzles, catching the ball, kicking the ball, direction following and she said he has alot in there, he just can’t get the words to connect yet. She wasn’t concerned about his playing with the cars as he did it towards the end of the session. I took it away, he was mad but got over it and started chasing the4 yr old. She said yay he has some quirky stuff,attention issues but still way to socially related to be on the spectrum. APRAXIC– i asked my speech therapist and he said most apraxic kids really struggle getting the words out but my son doesn’t struggle. He said he couldn’t rule it out but he really wasn’t thinking apraxic. Now i have to go to the meeting on Tues w/a neuro report w/apraxia w/a speech path who has been seeing him for 7 mths and never mentioned it. Do you have any advice — i googled it and i know its a motor planning disorder but can it present in different ways where his single words are pretty clear. Personally i think he leaves more endings off words. Like when i ask him his name he says Ri instead of Ryan. Mil instead of Milk. Makes the “d” sound for duck. He has alot of clear words too. Its funny but he sometimes turns his head when talking to you as if to try and focus on what he wants to say but its not coming out. Lately he has been play with the ggg sound as if its in his throat. Any NEW advice????
9. 

   Comment by Laura on 3 March 2010:

   Cetta - I have a TON of stuff here on the site about apraxia, so read thru those articles. Some SLPs are hesitant to diagnose apraxia in a child under 3, so it’s not on their radar diagnostically. Many children who are on the spectrum do exhibit motor planning difficulties (which is a speech disorder) in addition to the language challenges. My best advice is to keep digging and go with what feels right to you as his mom. By the way, I do have a great DVD on treating Apraxia at home, but the basic techniques outlined in Teach Me To Talk is where I always recommend that parents start first. So good to hear from you! Keep us updated! Laura

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